11AM – 12:15PM
Location: Hampton Room 1
Please note: This time slot contains 1 x 60 minute workshop
LESSONS WE ARE LEARNING: USING PARTICIPATORY ACTION RESEARCH TO INTEGRATE PALLIATIVE CARE, HEALTH PROMOTION AND PUBLIC HEALTH THROUGH THE DÖBRA RESEARCH PROGRAM IN SWEDEN
Presented by: Carol Tishelman, Olav Lindqvist, Ida Goliath
Public health and health promotion approaches to end-of-life (EoL) research and care are still rare in Sweden. People remain generally ill-prepared for encounters with death and unable to advocate for quality EoL care; this may be reflected in Sweden’s low scores for community engagement in the 2015 Quality of Death index. We have consolidated our endeavors into a cohesive national transdisciplinary research program, DöBra (a pun meaning both ‘dying well’ and ‘awesome’ in Swedish). In DöBra, we investigate how culture, the environment and conversation can promote constructive change and support better quality of life and death among the general population, in specific subgroups and in interventions directed to staff caring for dying individuals, their friends and families. DöBra uses ideas from new public health and the Ottawa Charter as umbrella theoretical frameworks and participatory action research as an overarching methodological approach.
In DöBra we aim to achieve change in communities in a broad sense. In this interactive workshop, we therefore focus on the particular challenges we encounter in conducting stringent research when trying to catalyze, rather than control, change processes. We will share our ideas, experiences, reflections, tools and approaches as well as results, related to using a variety of strategies to bring together a broad range of stakeholders to co-create experience-based evidence through innovative approaches. We begin by linking theory, research and practice through discussion of the overarching ideas and individual projects, with the second part of the session based on audience engagement with various tools used in DöBra.
Location: Hampton Room 2
Please note: This time slot contains 1 x 60 minute workshop
EMBRACING LIFE- THE BETHLEHEM SCHOOLS’ PROJECT, AN “ICEBREAKER” & “A FOOT IN THE DOOR”
Presented by: Mary Hocking, Andrea Grindrod
This workshop details a Partnership involving a High school, a Hospital (Calvary Health Care Bethlehem), La Trobe University and Palliative Care Victoria which seeks to support Community Capacity and resilience in dealing with Life-Limiting illness, death, dying and Loss.
This alliance has produced an educational resource which may be used, not only as a tool to normalize death, but also as a means of exploring ‘keys to well-being’ at any stage of life, through any loss or challenge.
This workshop features a template which has been trialed, adapted and evaluated in High School, workshop and Hospital induction settings within Australia.
Responses thus far have been “overwhelmingly positive”.
Translating evidence of positive outcomes into Education & Health Care Systems, is a challenge – This workshop offers a means of approaching both.
The conclusion of the workshop provides a number of insights:
- Engaging communities in discussions about well-being and harnessing the insights of youth is a palatable means of discussing well-being at end-of-life.
- What we know, as a community about supporting people with life-limiting illness is applicable across the span of life – not just at the end.
- Just as it takes a village to raise a child – it takes a village to ensure a quality end-of life experience.
What began as a one-off hospital immersion for Secondary School students, has grown to become a sustainable educational resource, applicable across a number of domains – with the capacity to become an evidence-based means of increasing community EOL capacity.
Location: Room 106 A
Please note: This time slot contains 1 x 60 minute workshop
LINKAGE STRATEGIES FOR SUCCESSFUL AND SUSTAINABLE PARTNERSHIPS: A PRACTICAL FRAMEWORK FOR COMMUNITY ENGAGEMENT BY PALLIATIVE CARE SERVICES.
Presented by: John Rosenberg, Wendy Gain
Partnerships are central to the success of linkages between palliative care services and the communities they support. The goal of partnership is to achieve more than individuals and groups can achieve on their own, yet the concept is often poorly understood. A clearly articulated understanding of partnership is a powerful step in transforming an organization’s engagement with the community.
The aim of this workshop is to enable participants to gain a clear understanding of partnership, understand the recognized evidence-based principles of establishing and maintaining partnerships, and identify practical approaches to partnering to take back to their organizations and communities.
Location: Room 106 B
Please note: This time slot contains 1 x 60 minute workshop
A NEW METHOD FOR DEVELOPING COMPASSIONATE COMMUNITIES AND CITIES MOVEMENT: “TO-DOS CONTIGO” PROGRAMME (WE ARE ALL WITH YOU): EXPERIENCES IN SPAIN AND LATIN AMERICA COUNTRIES.
Presented by: Emilio Herrera Molina, Tamen Jadad García
Todos Contigo (We are All With You) is a social awareness, training, and implementation network of care programme for citizens to support, accompany and care for those who face advanced chronic disease and end of life situations. From New Health Foundation this programme collaborates with the Public Health and Palliative Care International Charter of Compassionate Communities. It seeks to promote a new integrated palliative care model in the daily lives of individuals, to make families and health/social professionals the main promoters of compassionate communities and cities movement.
New Health Foundation has developed a new methodology for the development of Compassionate Cities.
The method has defined resources, tools and steps for developing compassionate communities that will increase public health and palliative care knowledge and a series of indicators for structure, processes and results that allow us to measure the impact of the implementation in compassionate cities.
This poster will give an overview of the map of Spanish and Latin American cities that have joined the movement. At the moment (January 2017) the following cities are involved: Seville and Badajoz in Spain; Cali, Medellin, Fasagasugá, Bogotá and Buenos Aires in Latin America.
Location: Room 106 H
Please note: This time slot contains 1 x 60 minute workshop
THE SOCIAL DETERMINANTS OF HEALTH IN LIFE AND DEATH: RESEARCH AND PROMISING PRACTICES IN THREE CANADIAN CITIES TO IMPROVE ACCESS TO PALLIATIVE CARE FOR STRUCTURALLY VULNERABLE PEOPLE
Presented by: Ashley Mollison, Naheed Dosani, Simon Colgan, Sonya Jakubec
People who experience a deficit in the social determinants of health (SDOH) including inadequate housing, poverty, and racialization, as well as high rates of mental health and substance use, and stigmatization of diseases such as HIV/AIDS, are often underserved by current palliative care services. “Structurally vulnerable” people have fewer social supports, lack financial resources, adequate and ‘safe’ housing for formal care provision, and often die in places that do not meet their unique needs, alone, or in the care of workers who have limited training and support to provide quality palliative care. In this workshop we will draw on our experiences of working with structurally vulnerable people through the Palliative Education And Care for the Homeless (PEACH) program in Toronto and the newly developed, Calgary’s Allied Mobile Palliative Response Program (CAMPP), and findings from a three-year ethnographic study in Victoria examining access to palliative care for structurally vulnerable people.
Responses to this public health issue require community-led, participatory partnerships. In this interactive workshop, we will engage participants in conversations related to promising practices to improve access to high quality palliative care for individuals experiencing structural vulnerabilities, and encourage (re)conceptualizations and (re)orientation of home, family, and caregiving. We will: (1) synthesize research regarding care for structurally vulnerable populations in need of palliative care; (2) discuss promising practices for improving access to care for these populations; and (3) work with participants to apply these promising practices in diverse case examples.
Location: Room 209
Please note: This time slot contains 1 x 60 minute workshop
KIDS GRIEVE2: A FREE MONTHLY ON-LINE Q&A TO BRIDGE THE KNOWLEDGE GAP
Presented by: Andrea Warnick
Kids Grieve2 Q&A is a free monthly on-line question and answer session aimed at bridging the knowledge gap that exists between the current literature and the adults who are supporting grieving children and youth. This initiative, which is open to anyone who has access to a computer and the internet, was launched in 2016 by Canadian Virtual Hospice and is utilized by parents and other caregivers, as well as professionals and volunteers from across Canada and beyond. It directly engages individuals and organizations to meet the needs of children who are experiencing dying, death or bereavement in their lives.
Community partnerships play an important role in this resource as different children’s grief organizations are invited to co-host the Q&A so participants have access to not only the expertise of Virtual Hospice, but from other organizations as well.
This workshop will provide an overview of the literature on supporting grieving children and youth, and will identify the disconnect that often exists between the literature findings and current practice. The workshop will describe the creation and evolution of the Kids Grieve2 Q&A, including a description of the toll-free children’s grief helplines available throughout Great Britain which served as the inspiration for the initiative. A segment of one of the recorded Q&A sessions will be played to allow participants to experience the platform. An in-person Q&A session will be included in the workshop, to give participants the opportunity to have their own questions answered and to learn from the questions of others.
Location: Theatre Hall 110
Please note: This time slot contains 1 x 60 minute workshop
DEVELOPING A BEREAVEMENT CARE SERVICE IN PEDIATRIC PALLIATIVE CARE: LESSONS FROM THE TRENCHES.
Presented by: Leigh Donovan, Karen Joy
The inaugural Bereavement Support Program based in the Paediatric Palliative Care Service, Lady Cilento Children’s Hospital was established in 2010. This was the first service of its kind to be established in Australia. Over the course of the past six years the service has grown and responded to the needs of families whose child has been diagnosed with and died from a life limiting condition. Drawing on practice wisdom; contemporary theoretical approaches informing loss, grief and bereavement; public health models of palliative care; and research findings from doctoral studies, Leigh and Karen will guide workshop participants through the critical steps in establishing a sustainable and holistic paediatric bereavement care service which straddles the acute hospital setting, palliative care service and community setting. Core service components discussed will include anticipatory grief support for family members; education as a tool for building self-efficacy within the family system and their community of supporters in the context of paediatric palliative care; advocacy in the hospital and community health setting around the needs of families following the death of a child; adopting public health approaches to bereavement care. Workshop participants will be encouraged to translate this new knowledge into their own professional context taking into consideration geographical, cultural and spiritual features of the families they care for. Participants will leave this workshop with a framework for establishing a bereavement care program based in a paediatric palliative care service.