Presented by: Kelli Stajduhar, Naheed Dosani, Simon Colgan, Sonya Jakubec
People who experience a deficit in the social determinants of health (SDOH) including inadequate housing, poverty, and racialization, as well as high rates of mental health and substance use, and stigmatization of diseases such as HIV/AIDS, are often underserved by current palliative care services. “Structurally vulnerable” people have fewer social supports, lack financial resources, adequate and ‘safe’ housing for formal care provision, and often die in places that do not meet their unique needs, alone, or in the care of workers who have limited training and support to provide quality palliative care. In this workshop we will draw on our experiences of working with structurally vulnerable people through the Palliative Education And Care for the Homeless (PEACH) program in Toronto and the newly developed, Calgary’s Allied Mobile Palliative Response Program (CAMPP), and findings from a three-year ethnographic study in Victoria examining access to palliative care for structurally vulnerable people.
Responses to this public health issue require community-led, participatory partnerships. In this interactive workshop, we will engage participants in conversations related to promising practices to improve access to high quality palliative care for individuals experiencing structural vulnerabilities, and encourage (re)conceptualizations and (re)orientation of home, family, and caregiving. We will: (1) synthesize research regarding care for structurally vulnerable populations in need of palliative care; (2) discuss promising practices for improving access to care for these populations; and (3) work with participants to apply these promising practices in diverse case examples.