Presented by: Santiago Corrêa
Brazil has 206 million people, and 1.2 milliondeaths and600,000 new cases of cancer per year. Palliative Care services are patchily distributed.
The Family Health Strategy, made up from50,000 primary care teams across Brazil forms a comprehensive primary care network.
The Project EstaraoSeuLado- Primary Palliative Care developed workingfrom CommunityCenters. We created a model based on compassionatecommunities, with community carers working alongside primary care teams.We identified people who need palliative care, gave them specific care and enrolled their carers into a program of monthly meetings called “ComunidadeCuidadora”. We discussedcaring at end of lifeand provided skills training.During 2015 we ran 8 training programmeswith anaverage of 10 carers.The major themes of discussion were carer burnout, dealing with denial and skills needed daily. The effect of these meetings were better relations between carers and professionals with expansion of the naturally occurring supportive network. The results of this projecthave been remarkable. The joint working of professionals and supportive networks together is recognised as being transformational. Carers themselves spread this approach by recommending it to others they know with life limiting illness.
We will discuss the model and how it can be replicated more broadly across Brazil.Family Health teams can use tools of identification, evaluation and assessment working withnetworks including the community as an important part. Wewill propose anew model of End-of-Life Care to be adopted as national policy.