Presented by: Silvia Librada Flores
This multicentric research is being carried out in Spain and Latin American countries (Badajoz and Seville in Spain, Buenos Aires, Argentina, Cali, Medellin, Fusagasugá, and Bogotá in Colombia). It analyzes the needs of people receiving palliative care and the community networks that cover these needs.
The objectives of the research are to
- To analyze needs of people with advanced chronic disease and at the end of life.
- To Identify caregiver profiles for people at the end of life.
- To Identify what activities are developed by whom, to meet these needs.
- To develop an action protocol for the accompaniment and care taking by caregivers, depending on the profile of the members of the community network.
During the process of an illness there is, in addition to the main carer, an average of 3 people who also care for the person in need, one way or another. On occasions we have counted up to 7 additional people. These new networks most attend to the needs related to daily activities such as: grocery shopping, laundry, transportation and mobility, etc.
Knowledge regarding “Care Networks” allows us to complete the vision of integrated care centered on the person at the end of life. Understanding the role of each carer in the network will help us develop know-how for citizens that care and accompany people at the end of life.
The results of this multicentric research will allow the design of an action protocol of care services and methods for attending to needs according to the profiles of the people who care for the patient in an advanced and terminal situations.