Presented by: Patrick Schuchter, Klaus Wegleitner
Background & interest
The project ‘Caring community in living and dying’ in the Tyrolean community Landeck aimed to strengthen networks and solidarity in the community in order to support family caregivers. The whole project lasted three years (2012-2015). In our presentation we focus on findings from the first period (‘survey’) the objective of which was to understand the local care culture with its resources, deficits, and peculiarities. The research questions of the survey were:
– What are important characteristics of the local care culture in its strengths and weaknesses as perceived by our interview partners?
– Which general conclusions can be drawn from our research to understand the elements that build resilient communities and networks in end-of-life care?
Focus groups and individual interviews were carried out with: family carers, hospice volunteers in the region, coordination persons of self-help groups, the local undertaker, the local catholic pastor, the general practitioners of the community, and the ambulatory nursing care team.
Our data analysis and interpretation revealed general categories (dimensions or ‘ingredients’) of a web of care relationships. We interpret these elements as ‘ingredients’ because a) it cannot be determined from the outset who contributes a certain ‘ingredient’ to the care-web, and b) the required ‘dosage’ may differ from case to case. For this reason the ‘ingredients’ are described as abstract entities which come to life through persons (and organisations) in their different roles. These ingredients are: competency, wisdom, keeping each other in mind, access to house and soul, coordination, moderation, freedom from care.
In our contribution we will present findings, discuss the practical relevance and consequences for community development and reorientation of health care services and will briefly point at some conceptual implications for public health approaches in end-of-life care and for care ethics.