Presented by: Olanrewaju Onigbogi
Current global trends seem to encourage the gradual shift of end-of-life care for cancer patients from the hospital settings to homes. This has created increased complexity in resource-limited settings with many at risk of low quality or inadequate end-of-life care. This study was conducted to determine the perception of relatives of cancer patients in Lagos about home-based end-of-life care.
We conducted key informant interviews for relatives of cancer patients who were recruited from the a cancer clinic. Each interview was recorded and transcribed with the data analyzed using NVivo 8.0. Emerging concepts from the data were labeled, categorized and coded as appropriate.
We interviewed a total of twenty eight persons ( eighteen females and ten males) who had accompanied cancer patients to the clinic. We excluded those who did not currently reside in the same location with the patients. By the 24th interview, we had no new ideas or themes emerging through the later interviews. A key concept is that of the expenses involved in creating supportive environments for these patients. Another important concept was the percieved inability to manage pain appropriately at home.
There is a need to encourage the development of personal skills or care givers and strengthen community action as it relates to end-of-life care for cancer patients in resource-limited settings.